A mixtape for multiple sclerosis

A mixtape for multiple sclerosis

Friday 30 October 2020

Autumn almanac

 Oh, it's been a joyous week off work.

A week with husband and daughter. Slightly limited on options, but not on fun.

We've been chasing through leaves, snuggling with films, chomping on treats and laughing a lot.

It's most certainly been an appreciate-the-moment sort of week.

Autumn almanac by The Kinks



Thursday 22 October 2020

Statuesque

Oooh, it's been a couple of weeks hasn't it?

Sorry.

The reason for this is simply an incredibly busy work schedule.

I picked up a new part-time contract in the summer, which has gradually expanded to nearer full-time.

It's in the communications team of a large organisation - and one which has found itself even busier than usual due to the current horror show.

I'm there to do the 'business as usual' comms that are still going on round the edges of the crisis stuff.

And, surprisingly, there have been quite a few. It's been quite a test - although the work is familiar, the speed and volume is quite a pace on from when I last did this kind of work.

So, my MS brain struggles. I'm not with people to ask all the questions. Plus, technology.

Although it's been quite tough and I have had a fair few sleepless nights, I haven't made a total hash of it (yet) and should probably feel quite proud.

I've also done it through the stress of starting new meds, the increased worry of infection and, like the rest of us, being in the middle of AN EFFING GLOBAL PANDEMIC.

The super exciting comms things so far for me have been the launch of a new music festival and the celebration of an iconic local music venue.

It's been a delight - not least because although I am surrounded by chaos, I am also surrounded by music.

And there's nothing nicer than that.

So in honour of their confirmed appearance at the new festival, I'm paying tribute to one of the acts with this week's tune.

They were a Brit Pop fave and, after making it through the past fortnight, I do feel like I should stand a bit taller.

:: Statuesque by Sleeper



Thursday 8 October 2020

Wishin and hopin

 First week of Cladribine done. I didn't explode.

But I did feel very tired and quite wary of touching anything, especially as the pack of tablets came wrapped in yellow and black wasp-like warning stickers with TOXIC written in a most unfriendly-like manner on them.

So week one down, week two to go. That'll be later this month.

And then nothing I can do except take care of myself, avoid people with any kind of bugs and just return to the default MS position of simply hoping that they'll do some good.

:: Wishin and hopin by Dusty Springfield