A mixtape for multiple sclerosis

A mixtape for multiple sclerosis

Friday 26 February 2021

Distant sun

Oh thank goodness. A bit of warmth and sun.

And with it a bit of hope that the Covid tide might be turning.

Awaiting news on my jab - want it, but Cladribine impact means I may need to hang on until my immune system has reconstituted to a useful level.

In the meantime I shall get myself into the sunlight that this weekend is promising and drink in the Vitamin D.

:: Distant sun by Crowded House






Thursday 4 February 2021

Sandstorm

Since Christmas it feels like my husband and I have been living under a suffocating volume of work.

Not able to see a clear way ahead because there's just too much on top of us.

While I'm obviously grateful to be in work, the current situation, combined with the awfulness of the past 12 months, is really starting to take its toll.

I'm in quite a lot of daily pain and on occasion struggle to think and/or talk.

My husband who is usually an astonishingly calm and patient man is starting to fray at the edges.

I'm not sure how much longer we can keep this up and I have no doubt we are not alone.

We're neither of us frontline staff, so heaven knows how they are coping, but we're just about getting to the end of our joint tethers.

Unsure what the answer is really.

Although it's possibly in one of the online well-being workshops our employees are running. That we haven't got time to attend.

Sigh. 

Thanks for that little vent. Better out than in.

:: Sandstorm by Cast