A mixtape for multiple sclerosis

A mixtape for multiple sclerosis

Wednesday, 31 May 2017

Big yellow taxi

It's the end of May! (Just to be clear, that's a calendar reference, not a premonition of the upcoming election. Although who knows.)

Unbelievable that five months have gone by so quickly – and in our case, so medically busily.

In the past five months, four members of our family have needed to call on the NHS a total of 63 times.

Sixty three. That's an average of 12 times a month accessing an aspect of the service.

Even with the inclusion of me as a resource-draining individual, that's a pretty hefty demand from a small group of people.

The appointments have covered brain, eyes, teeth, heart, breasts, digestive system, liver, knees, emotional well-being and countless blood tests.

They've required six different consultants in six different specialities, four different hospitals, 10 specialist nurses, seven general practitioners, 19 nurses, three radiographers, four dentists and four pharmacists.

Treatment has included cardioversion, endoscopy, scans, fine needle aspiration, eye examinations, x-rays, root canal and a variety of medications.

At every appointment we've been treated with care, courtesy and professionalism. Yes, very occasionally we've had to wait a bit but there's always been an apology.

And every time there have been an army of other people waiting to be seen and treated by the same doctors or nurses or dentists in the same thoughtful and professional manner.

All that use and we're not even halfway through the year yet.

I've written previously about my admiration for the NHS and while I acknowledge parts of it aren't perfect, the thought of being without it doesn't bear thinking about.

But an organisation which was formed on three core principals:
  • that it meet the needs of everyone
  • that it be free at the point of delivery
  • that it be based on clinical need, not ability to pay
looks to be increasingly under threat and that absolutely terrifies me.

I want to support the NHS and I want to thank it and everyone who works in it.

I know what I've got and I don't want it to be gone.


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