We had a lovely holiday
in Pembrokeshire last week – ice-cream, sunshine, sandcastles,
actual castles and defeating the most unnerving villains ever created
at the Doctor Who experience.
As this was a British
summer holiday, it wasn't always hot and there was rather a lot of
wind, but this didn't deter my daughter and I from donning our
wetsuits (useful to fool other beachgoers into thinking you're more
active and capable than you actually are) and attempting to
bodyboard.
I was pretty determined
to try this as part of my newly found gung-ho approach to tackling fear.
So, with a kindly
donated bodyboard, we toddled off down to the sea and had a go.
Oh my word, it wasn't
glamorous.
Daughter did well in
the shallower waves, keeping balance and managing to stay afloat. I
needed to go further out because
40-something-lying-stranded-in-the-shallow-water looks vaguely
pathetic. Especially if you're wearing a people fooling wetsuit.
So out I went and onto
the board I got. And the waves came. And I got pretty impressively
drenched. It was bit scary, very flipping salty, but absolutely
great.
Coming out of the water
with my eyes closed and flailing around for a towel/tissue/husband's
shirt to wipe my face, I suddenly recognised a feeling.
Not one of pride, not
one of success, not even one of minor disbelief that I was on a
bodyboard in a wetsuit – but an actual feeling. In my actual feet.
I haven't felt anything
properly in my legs and feet since a significant relapse I had after
my daughter was born almost nine years ago. All nerve pathways controlling temperature and
sensation were utterly scrambled.
Nine years of not only being unable to tell if the bath water is hot or cold, but not even
recognising that I'm in water. Nine years of being unable to tell if
the radiators are on or off or if I'm walking on stone or carpet.
I've cut my feet on
glass I didn't realise was in my shoes and unknowingly burned blisters on my legs when a hot water bottle burst in my sleep.
But this holiday, I
could feel that the water was both gloriously wet and pleasantly cool. That the rock pools lying in the path of the sun were
deliciously warm.
On returning home, I
can tell without using my hands that my feet are cold. I know what
grass feels like on my feet again, I can step on something sharp and
know it hurts.
What I don't know is
why I can suddenly feel again. Has it taken nine years for the damage
to fade? Has it been incrementally improving without me realising? Has the Tecfidera played any part?* What on earth happened
to make me feel again?
I'll ask my MS nurse
when I next see her, but until then, this is one time that I am actually happy to be
experiencing cold feet.
*Unlikely, it's a disease modifier, not a disease mender.
No comments:
Post a Comment