A mixtape for multiple sclerosis

A mixtape for multiple sclerosis
Showing posts with label learning to live. Show all posts
Showing posts with label learning to live. Show all posts

Wednesday, 26 July 2017

Dear Prudence

So I thought I’d write a little bit about fear this week.

I know, cheering.

It’s been sparked by last week’s bike purchase and the things I was thinking as I finally went out on said cycle. TWENTY FIVE years after I’d last sat on one.

We are lucky enough to live within easy reach of the countryside and there’s a handy track behind our little estate, just waiting for nervy cyclists wearing their brother’s old bike helmet.*

So filled with both trepidation and excitement – but mainly trepidation – I clambered aboard and pushed off.

And do you know what, it WAS wobbly and it WAS scary and I DID fall off (distracted by a passing cat) but it was a complete and absolute utter joy.

I was reminded of being a teenager and biking to school, skirt hoiked up, whizzing happily in the traffic. I was suddenly younger and free-er and far more smiley than I thought I would be.

It wasn’t without worry – my steering was questionable and the brakes took me by surprise a few times. Also the seat really, really needs more padding, but I was so proud of myself.

It made me realise that I can, for the time being at least, do the thing I wanted to do – not despite the fear, but alongside it.

And I think this is quite a key part of living with MS.

There will always be fear – fear of diagnosis, fear of the damage, fear of medication: the side effects and the efficacy rates, fear of what others think, fear of relapses, fear of progression, fear of the unknown and fear for the future.

And while I don’t advocate not talking about your fears or refusing to acknowledge that they are there, it cannot help to dwell too much upon them. 
What can help is to find a way to live with this ever present companion and somehow accept it into your life.

Yes fear has a voice, but it isn't the only voice. There are other far more interesting, positive and wise speakers out there that I would like to ride with.






*The helmet might be kindly described as vintage, although my daughter collapsed in fits of giggles when she saw it, so perhaps laughable is a more accurate term. It belonged to my younger brother who last wore it over his questionable mullet at the age of 14. When I mentioned to my dad that I’d bought a bike but failed to buy a helmet, he went immediately went to his magic hoarding shed and pulled the original box out with helmet intact like some kind of head protecting wizard.