A mixtape for multiple sclerosis

A mixtape for multiple sclerosis

Wednesday, 19 April 2017

Lily, Rosemary and the Jack of Hearts

When you become a metaphorical card-carrying member of the multiple sclerosis community, you can celebrate this news by carrying an actual, literal card.

This handy little orange plastic jobbie explains that a person has MS, reassures panicked bystanders that it’s not infectious, and details why the holder might need help fast:



It is intended to be produced if you need the loo urgently, are at risk of falling or cannot see or speak clearly and is - assuming the person being presented with the card is helpful - a useful thing to have.

But from this card-carrying member’s point of view, the orange card I would far rather have had on diagnosis is this one:



Not because I am some sort of top-hat shaped recidivist, but because if you’re given one crappy incurable disease, surely you should automatically have a free pass from any other sort of health calamity.

Seems only fair.

But sadly, in our own faulty deck of chance cards, this is not necessarily the case. Something neatly outlined in *panic warning* this particularly scary article linking an MS diagnosis with higher risks of other nasties.

It’s not just the big illness risks either, there’s a whole list of other complaints that exist as part of some sort of bad MS knock-on joke and for which I firmly believe we should get a whole pack of get out of jail free cards.

Things like muscle atrophy due to long periods of relapse inactivity, dental problems due to stiffness, weakness or muscle spasms affecting the ability to brush or floss properly, weight gain because of difficulty moving around or poor nutrition due to limited energy or a reduced income.

Not all of these things - larger or lesser - happen to everyone with MS. And of course, some can be balanced with help, information and support. 
But such piece-meal construction of a healthy life makes for a pretty precarious paper structure.

And, like any house of cards, it only takes one light breeze for them all to come tumbling down.


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