She
had her first relapse around this time last year and still feels she is
dragging her way through the improvement swamp.
After
the initial drama of the damage being done, the hospital admission, the
steroids and the crisis management, it’s actually the recovery that proves
itself to be the more testing journey.
A
journey that manages to be both tedious and terrifying.
There
might be noticeable leaps during the process, there might be tiny incremental
steps, but at some point in every recovery comes the point at which you begin
to wonder if this is it. Is this as much as I’m going to get back?
Sometimes
it isn’t and your body will surprise you with a further glorious bust of
repair.
But
sometimes it is and that is when you have no choice but to start the process of
mourning and gradual acceptance.
Every
time it happens, it is like a mini death
and every time it happens, you have to go through a grieving process.
And
it all take SO LONG. My longest recovery (or, more accurately, where I improved enough, but not
enough to be as I was before) took a year and a half.
A
year and a half of hoping and waiting and watching and bargaining and being careful and declining invitations and
being so bloody sensible.
With
the end result of, well, what? Damaged vision, painful skin, impaired balance,
cognitive mash.
As
I said to my friend, the whole process reminds me of a line from the wonderful
poet Philip Larkin.
In
his poem Dockery and Son* he describes life as “first boredom, then fear” and
it’s a line I think that could be stolen to describe the recovery process.
It
takes a lot of patience and strength to wade through a recovery. It takes a lot
to lie endlessly and uselessly in bed and wait, a lot to live in our own unhelpful
thoughts and a lot to drag ourselves up and carry on. Living with the dreadful knowledge that sooner or later this will
all happen again.
So
we should remember to be proud of ourselves – even in the darkest times.
To
be proud of how we make our own way through the boredom and the fear.
*Read the full poem here. It’s
wonderful.
I first fell in love with Larkin's lyrical discontent as an A-level student, but the full
aching sense of loss, disappointment and regret in this poem was lost on an
18-year-old. It’s only on re-reading as an adult that it’s made me cry.
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