Generally
I like it. And I am very appreciative of the fact that, generally speaking, I can still manage it.
On the other hand, on bad days (or bad weeks or months), it’s an almost impossibility.
And as of
last week, its become an actual impossibility as I was made redundant.
This
wasn’t a shock. I worked for an organisation which supports some of the most vulnerable in our society - but, by the nature of its work, is an organisation that needs support. Quite a lot
of it financial.
And
there’s not a lot of that about. Or at least not where it's most needed.
The
announcement of the swingeing cuts - and inevitable redundancies - that were being
made was given at a roadshow* last year. So since then I’ve been trying to prepare
for what this might mean for my future working life.
Thus far
I’ve been lucky with work – employers have tried to understand and support me, but
I know I won’t always find employment where this is the case. Or perhaps always
find employment.
I’m very
aware that although my professional knowledge and experience has increased
vastly since I was diagnosed, so have my physical and cognitive problems.
There are
many, many unfortunate things about the timing of MS, but one of the biggest is
that it tends to rear its ugly head in your 20s or 30s, the age at
which you’re really hoping to get your career started.
And then, as time and damage march mercilessly on, it gradually eats into your working life options. The opportunities for advancement, promotion and more income look increasingly slim.
In sitcom world being ditzy, clumsy and forgetful is amusing, charming, even endearing. In real life, you’re just a pain in the arse employment liability.
But, incredibly fortunately, an opportunity has come up that a couple of months ago I had no idea even
existed.
It’s new and it’s unknown and it will involve a pretty hefty amount of adjusting, but
it’s very interesting and includes the chance to use my old skills in a new
way.
It’s
very early days and I’m not sure how it will pan out, but it’s a chance I didn’t
expect to have and I am incredibly grateful.
*I wonder
what the internal thinking was behind roadshow as a name. It’s certainly
logical, members of our London-based management team travel out to a number of
points across the country where we have offices, programmes and projects. They
are, indeed, on the road.
But to
many of us the term brings to mind Radio 1 and it’s always slightly
disappointing that there’s no music, whistles and/or shouty DJs involved.
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