A mixtape for multiple sclerosis

A mixtape for multiple sclerosis

Wednesday 29 November 2017

Tumbling down


One of the common issues with MS is dreadful balance. Another is struggling with the impact of the cold.

Totally logical then, for the woman at the centre of one of the first documented case of the disease to also be the patron saint of ice-skaters.

Bizarre, but true. Here’s the short version of the story*:

Saint Lidwina of Schiedam was born in Holland in 1380. At fifteen, in a severe winter Lidwina was skating with friends when she fell and broke a rib and was put to bed in her family home.

She never fully recovered and became progressively more disabled and ill throughout her life. It is believed that she became paralyzed with the exception of her head and left hand.

Until her death at 53, she suffered intermittent pain, weakness of the legs and vision loss - although with some apparent periods of remission. A pattern indicating symptoms typical of MS.

After her death, she was canonised with the slightly unusual double whammy of patron saint of ice skaters and the chronically ill.

I’m sure there are some important things to draw from Lidwina’s story – by all accounts she continued to live her damaged life with grace, acceptance and thoughtfulness.

I’m also pretty grateful that I don’t live in a time without MRIs, neurologists and drugs.

But mainly I’m going to be very careful when considering any ice-skating invitations.




7 comments:

  1. Love your MS blog - only just come across it! Salutations from one MS-er to another :) ( http://bit.ly/mal-MS )

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  2. Oh thank you, that's really, really kind. And greetings to you too :)

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  3. Omg, can Santa bring me one as well. X

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  4. Replies
    1. Thank you for your lovely comments, they're very kind.
      I still can't believe the patron saint of ice skaters had MS - get me anywhere near the ice and it's certainly not pretty :-)

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  5. Found your blog today and it made me smile. We have just had to cancel our MS Moray Community Group Meeting because of tomorrow’s weather forecast for the North of Scotland. True to say, one strike and you’re out when it comes to slipping on ice and snow.

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    1. Aah, thank you, I'm glad it brought a smile :-)
      Sorry you've had to cancel your group, we've woken up to a blanket of the white stuff too down here in the Midlands.
      My daughter is very excited, I'm just trying to find the hot water bottle and boots with the most grip.
      Take care in this cold.

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